day 2: update

today has been a roller coaster of emotions.  we are still left with uncertainty and lots of unknowns.  the ultrasound did not show any anatomical abnormalities (which would include biliary atresia) however, they want to do a HIDA scan tomorrow morning to rule that out for sure.  blood work is leaving a lot of question marks...but we are blessed with a wonderful doctor who clearly knows what he is doing.  the liver specialist here at Children's is nationally known and recognized...so KG is receiving the best medical care possible.  we are thankful for all of the love, support and prayers as we continue to wait and take things one day at a time.

what we don't know...

• what the diagnosis is
• what the long term/short term effects are
• how long we will be here

what we do know...

• keller is still acting like her normal self
• liver enzymes are slightly high
• her liver, gall bladder, etc are still working
• she is pooping normal and healthy looking stools
• bilirubin (both conjugated and unconjugated) levels are high
• she is eating like a champ
• iron and ferritin levels are high
• she is still smiley and content
• her liver and spleen are enlarged...but so is her smile

what you can pray for....

• that the scan would give us answers tomorrow
• that keller continues to eat, sleep, and poop normally
• that the doctors wisdom so that they can continue to narrow down the list of possibilities and find a diagnoses
• that erik and i can get some rest
• that we can feel a sense of hope with so many unanswered questions
• for evie as she is confused and concerned

what we are are certain of...

• no name of any disease, disorder, or illness can stand up to the name of Jesus