heavy heart

on tuesday we took keller up to children's hospital for her checkup.  we always get a little anxious before we go, and this day was no different.  we did the normal routine...went and had her blood drawn (horrible experience every time...but luckily she recovers quickly)...and then headed up to our appointment with our GI docs.

dr. reyes came in and updated us that her liver enzymes had increased.  in fact, they were higher than they have ever been.  she consulted with dr. palomo (our attending GI doc) and between the two of them they recommended that we have a liver biopsy.  they want to take a closer look at the liver tissue to see what is happening.

so, now we wait.  on tuesday we will make a trip up to omaha again to have the procedure.  while the biopsy itself is pretty quick, it will take a few hours of observation afterward to make sure all is okay.  it's never easy watching your children go through things like this...and our hearts are weary.  i know we are surrounded by the best medical team and they will take great care of our sweet baby.  it will take a couple weeks to get the results.

it has been almost one year since we were admitted to children's hospital.  and for that entire year, we have known she has alpha-1 antitrypsin deficiency.  we knew the day would come that they would request a biopsy given this is a chronic disorder.  but, i was shocked to hear that her numbers had increased.  our sweet keller grace is happy.  she bounces all over the place.  she's loud, charismatic, smiley, curious, and appears to be extremely healthy.  you would never know that her liver is aggravated.

we covet your prayers.  please pray that erik and i can get rest.  that our families can get rest.  that evie can be protected from the emotional roller coaster.  please pray for dr. palomo and our team of doctors as they try to come up with more answers.  but ultimately, i beg you to pray the Lord wraps his arms around keller grace and protect her body and liver from any additional disease or damage.

we are humbled.  every time we walk through the doors of children's hospital, we watch parents with children who go through daily struggles that we cannot even imagine.  we are blessed.  we know that the Lord loves our children and will care for them.  but that doesn't change the fact that we feel weary and distraught as we wait.

Lord Jesus, please stick with us.  i beg you.