Wednesday, January 30, 2013
Wednesday, January 23, 2013
MLK weekend fun
We made a trip to Iowa to visit my birthmom and fam! We spent some quality time with my sister Kayla and her family. My brother, Ryan, also made the trip to hang out with us from ISU (I try not to hold his school of choice against him...ha!) We celebrated my nephew Spencer's birthday and had lots of play time with my nieces. FUN FUN FUN.
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| Sweet Harper |
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| These girls laughed so much! |
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| love her. |
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| Gramma and her girls! |
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| two of my favorite people in the whole world! |
Tuesday, January 22, 2013
Ultrasound results
Last Friday we took KG to Children's for an ultrasound. She did awesome! It took about an hour and she was so patient considering she was hungry and had to sit still (which seems like an impossible task for an 8 month old!).
Much to our relief, the results came back normal. The liver tissue has not been damaged. This is incredibly great news as this is a major concern for people with alpha-1 antitrypsin deficiency (1 in 20 children with alpha -1 deficiency need a liver transplant due to liver damage, disease, or cirrhosis). Because the alpha-1 protein virtually protects the liver and lungs, not having enough (deficient) of these little warriors (alpha-1) in her liver can cause damage to the tissues (I hope you are enjoying my parenthetical commentary). Since she showed symptoms so early in life, it has caused the doctors to be extra cautious and mindful on the condition of her liver (which this mama is thankful for). Things continue to improve and they think her numbers will continue to trend downward.
We will take Keller for labs in mid-February but we don't need to return to see her GI docs until April (I think we might miss seeing them! We love her doctors! However I'm not complaining!) Praise God!
So today we can breathe easier and thank God for His continued protection over my sweet babe.
Much to our relief, the results came back normal. The liver tissue has not been damaged. This is incredibly great news as this is a major concern for people with alpha-1 antitrypsin deficiency (1 in 20 children with alpha -1 deficiency need a liver transplant due to liver damage, disease, or cirrhosis). Because the alpha-1 protein virtually protects the liver and lungs, not having enough (deficient) of these little warriors (alpha-1) in her liver can cause damage to the tissues (I hope you are enjoying my parenthetical commentary). Since she showed symptoms so early in life, it has caused the doctors to be extra cautious and mindful on the condition of her liver (which this mama is thankful for). Things continue to improve and they think her numbers will continue to trend downward.
We will take Keller for labs in mid-February but we don't need to return to see her GI docs until April (I think we might miss seeing them! We love her doctors! However I'm not complaining!) Praise God!
So today we can breathe easier and thank God for His continued protection over my sweet babe.
Thursday, January 10, 2013
2012
january: evie found her love for playing dress up and being a princess. we spent a lot of time indoors due to the winter weather and were glad to have our own castle to escape to.


february: the first big winter snow storm came but it didn't stop us from attending sesame street live with evie. she LOVED seeing her friends (especially elmo)


february: the first big winter snow storm came but it didn't stop us from attending sesame street live with evie. she LOVED seeing her friends (especially elmo)
march: evie went to gymnastics at the YMCA every saturday. we had a blast. we also made a fun trip up to the omaha zoo with the harms clan.
april: april flew by as we started to count down the days for baby to arrive! evie got her new big girl room. we celebrated easter and my sister in law's threw me a baby sprinkle!

may: sweet keller grace joined us on may 23rd. words can not express the joy in our hearts.
june: while adjusting to being a family of four, we tried to spend as much time outdoors as we could.
july: we had some major highs and major lows in july. my best friend came to visit us and we loved every moment of those three days. but my mommy heart experienced a lot of pain in july. the Lord showed up in big and mighty ways. evie took a spill on the pavement and the next week we spent four days on an emotional roller coaster after keller's doctor sent us up to children's hospital of omaha. although keller was diagnosed with alpha-1 antitrypsin deficiency, we learned to trust our heavenly father in the midst of the scariest moments we've ever experienced....oh and if that wasn't enough...erik opened a restaurant at the end of july!
august: we tried to spend as much time outside as we could as our summer and my maternity leave quickly came to a close.
september: one of my favorite months packed with football, zoo trips, mahoney and family. i love fall.
october: more fall fun at the pumpkin patch and spending quality time with our family of four.
november: we had very special visitors in november when my best friend came for another visit.
december: as always, holidays were packed with fun! we loved every moment of december as it was filled with family and lots of love!
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