we are beginning to get in a routine/rhythm being a family with
liverkid. we took kg to children's hospital last week for labs/GI appointment. dr. reyes and dr. palomo were happy to see how well keller was doing. although her liver enzymes were still high...they are trending down. one of the best pieces of news came this. we were waiting on a couple more results...specifically her AFP level. when keller was first diagnosed her AFP was in the THOUSANDS. today, our favorite nurse Sarah called to tell us her AFP is only a FOUR. yes, that's right. single digit FOUR. AFP is a protein that is present in patients with liver disease...so given the number is so low...we are singing our praises!
prognosis has not changed. we will return for another checkup in february. after that, if things remain stable we may only have to have appointments every six months or so. she will continue on her meds (ursodiol) and we will continue to live a normal life.
she was a real trooper at the hospital. it is always a long day, but having our day interrupted by this guy is a real treat! thankful uncle jason has been working at children's so many different days we have visited!
keller grace. we wouldn't change anything about you. we have experienced difficult days and sleepless nights worrying about you - - but you are perfect. just the way you are. we are thankful for your boisterous, loud and charismatic way. we love your "i can do anything i want" attitude. i love your snuggles and slobbery kisses. but most of all, i love knowing you are mine. forever and ever. love, mommy.
